How Can We Better Share Knowledge About ADHD and Its Related Conditions?

What you need to know

• Effectively sharing ADHD research requires identifying and involving key stakeholders early
• Patient organizations play a crucial role in translating research for those affected by ADHD
• Training early career researchers in communication skills helps bridge the gap between science and society

The Challenge of Sharing Complex Research

Have you ever tried explaining a complicated topic to someone who has no background in it? That’s the challenge researchers face when sharing their findings about ADHD and related conditions with the public. While scientific discoveries can potentially help many people, this knowledge often stays trapped in academic journals, using language that’s difficult for non-experts to understand.

Building Bridges Through Early Engagement

One key lesson researchers have learned is the importance of involving stakeholders - like patient advocacy groups, healthcare providers, and people living with ADHD - from the very beginning of research projects. When patient organizations like ADHD Europe participate in study design, they help ensure the research addresses real-world needs and that findings will be communicated effectively to those who need them most.

The Power of Patient Partnerships

Patient organizations serve as crucial bridges between researchers and the ADHD community. They help translate complex scientific findings into practical, accessible information through events, webinars, and educational materials. For example, researchers and advocates collaborated to create “Shine a light - understanding ADHD,” a short film that explains ADHD concepts in clear, relatable terms.

Training the Next Generation

An important focus is teaching early career researchers how to communicate effectively with different audiences. This includes training in:

• Using patient-friendly language
• Creating engaging content like videos and social media posts
• Understanding diverse perspectives and needs
• Working collaboratively with patient groups and healthcare providers

What This Means for You

If you’re affected by ADHD - whether as someone living with the condition, a family member, or a healthcare provider - these efforts to improve research communication mean:

• More accessible information about new ADHD findings
• Greater opportunities to participate in and influence research
• Better translation of scientific discoveries into practical applications
• Improved dialogue between the research and ADHD communities

Conclusions

• Effective research communication requires early and ongoing collaboration between scientists, patient groups, and healthcare providers
• Using clear, accessible language and multiple formats helps reach diverse audiences
• Training researchers in communication skills leads to better knowledge sharing with the public